Hi Everyone, Two months ago my doctor told me to stay on the same Hydroxurea dosage of 500mg. daily even though my platelets were steadily increasing and had reached 887 and guess what?  My platelets went down over 100 points to 785.  I just couldn’t believe it.  Also, my anemia was gone.  Apparently I am one of the people who get anemic taking a higher dosage of Hydroxyurea.  My doctor said that he was going keep me on the same dosage of  Hydroxyurea because I was doing so well.  He also cautioned me that if I experienced any of the pre-treatment symptoms of ET such as burning sensation in my fingertips and toes, painful leg aches, muscle weakness, (bright light) colored spots in my vision, also (white light) spots that were like I was looking through a jagged piece of glass, etc. to call him immediately.  So far, I am doing great.  I hope I don’t have to call him or even see him for obvious reasons.  I have another appointment in two months and that will be soon enough.  I feel good now and really hope it stays that way.  I am not fond of taking any kind of medicine.  I really don’t know why I feel that way.  However, I am all for it if it will prolong my life. 

For all of you out there who are suffering with this disease, there is hope.  They are working on a cure  everyday.  No one knows why we have ET and no one knows how we can get rid of it.  For now, we just have to learn to live our lives the best we can and hope that they will soon come up with a cure.   WOULDN’T THAT BE NICE! 

Don’t forget to post a comment.  I really love to hear from you.  I look forward to it everytime I check my blog.  Kanetta