Comments on: Kanetta Update http://kanetta.com/kanettas-medical-update-august-2008/kanetta-update/ The wonderful world of Kanetta! Fri, 13 Jan 2012 14:48:20 +0000 hourly 1 http://wordpress.org/?v=3.0.3 By: Monique http://kanetta.com/kanettas-medical-update-august-2008/kanetta-update/comment-page-1/#comment-1248 Monique Mon, 16 Mar 2009 00:09:22 +0000 http://kanetta.com/?p=39#comment-1248 I was diagnosed about a month ago and we are still trying to reduce mt count which is aroung 1100. I am finding it hard to deal with this as i am not sure what to expect and how to deal with it. I am gald that i found this site. I was diagnosed about a month ago and we are still trying to reduce mt count which is aroung 1100. I am finding it hard to deal with this as i am not sure what to expect and how to deal with it. I am gald that i found this site.

]]> By: mary http://kanetta.com/kanettas-medical-update-august-2008/kanetta-update/comment-page-1/#comment-209 mary Fri, 16 Jan 2009 19:49:24 +0000 http://kanetta.com/?p=39#comment-209 Diagnosed with ET eighteen years ago, I have been on anagrelide for the past 16 years (started with the Mayo Clinic tests of anagrelide for ET. This controlled my platlet count for years but about 4 years ago I had to add hydrourea to bring down my rising white cell count. Both long term use of anagrelide and hydrourea have cause some intense anemia problems. Drugs to conteract anemia make me really sick. Off those for four years now. I am glad to hear from others with this disease. Diagnosed with ET eighteen years ago, I have been on anagrelide for the past 16 years (started with the Mayo Clinic tests of anagrelide for ET. This controlled my platlet count for years but about 4 years ago I had to add hydrourea to bring down my rising white cell count. Both long term use of anagrelide and hydrourea have cause some intense anemia problems. Drugs to conteract anemia make me really sick. Off those for four years now. I am glad to hear from others with this disease.

]]> By: Dawn http://kanetta.com/kanettas-medical-update-august-2008/kanetta-update/comment-page-1/#comment-207 Dawn Mon, 01 Dec 2008 16:06:00 +0000 http://kanetta.com/?p=39#comment-207 Hi Me too, I was diagnosed in last 4 months by routine check up with platelets 1200k. I was put on Hydrea 1000 mg/day. Now, my platelets is staying at around 400k. Before that I often had headache but after treatment started it had gone. I am also tired more often. My last visit to doc, the medication was changed to Anagrelide because doc said it has less side effect than Hydrea for a long term using. I will tell you again about Anagrelide after taking for more than a couple weeks. Bye. Take care Hi

Me too, I was diagnosed in last 4 months by routine check up with platelets 1200k. I was put on Hydrea 1000 mg/day. Now, my platelets is staying at around 400k. Before that I often had headache but after treatment started it had gone. I am also tired more often. My last visit to doc, the medication was changed to Anagrelide because doc said it has less side effect than Hydrea for a long term using. I will tell you again about Anagrelide after taking for more than a couple weeks. Bye.

Take care

]]> By: Rachel http://kanetta.com/kanettas-medical-update-august-2008/kanetta-update/comment-page-1/#comment-195 Rachel Wed, 29 Oct 2008 05:50:16 +0000 http://kanetta.com/?p=39#comment-195 Hi, I was diagnosed with ET 15 years ago and have been going strong ever since. Sure I've had a few TIA's and ups and downs with the meds over the years, but also in that time I've had two healthy babies (that they said I'd never have). I agree with the Hydrea comments, it makes me feel really tired and upsets my stomach. But Interferon is worse! For me anyway. I hate feeling like you're living with a bomb ready to go off when it comes to the clotting risk. Like Michelle I too went off Hydrea for a year at a time, but the platelets always rise back up to an unacceptably risky number. That being said, the only clots I've had were always when my platelets were at a normal count. Go figure! Hi,

I was diagnosed with ET 15 years ago and have been going strong ever since. Sure I’ve had a few TIA’s and ups and downs with the meds over the years, but also in that time I’ve had two healthy babies (that they said I’d never have). I agree with the Hydrea comments, it makes me feel really tired and upsets my stomach. But Interferon is worse! For me anyway. I hate feeling like you’re living with a bomb ready to go off when it comes to the clotting risk. Like Michelle I too went off Hydrea for a year at a time, but the platelets always rise back up to an unacceptably risky number. That being said, the only clots I’ve had were always when my platelets were at a normal count. Go figure!

]]> By: Michelle http://kanetta.com/kanettas-medical-update-august-2008/kanetta-update/comment-page-1/#comment-193 Michelle Thu, 16 Oct 2008 08:02:17 +0000 http://kanetta.com/?p=39#comment-193 Hello, Nicoe to have found your blog.....I two have ET. I was diagnoised in 2003...I am amazed that you and I hae IDENTICAL SYMPTOMS.....they also told me it wa silent migraines, mine showed up in my blood . I was taking hydrea for 4 years until this past May I made the decision, along with my husband to go off of it. I was tired of feeling tired....so here I am doing ok..my platelets are staying around 863,000. So I guess I must live with it.....thanks for the blog and info Hello,

Nicoe to have found your blog…..I two have ET. I was diagnoised in 2003…I am amazed that you and I hae IDENTICAL SYMPTOMS…..they also told me it wa silent migraines, mine showed up in my blood . I was taking hydrea for 4 years until this past May I made the decision, along with my husband to go off of it. I was tired of feeling tired….so here I am doing ok..my platelets are staying around 863,000. So I guess I must live with it…..thanks for the blog and info

]]> By: Linda http://kanetta.com/kanettas-medical-update-august-2008/kanetta-update/comment-page-1/#comment-191 Linda Tue, 14 Oct 2008 00:15:14 +0000 http://kanetta.com/?p=39#comment-191 Hi Kanetta, I was just diagnosed with ET a couple of weeks ago. I went in for a routine annual exam, mentioned to my doc that I was feeling lousy, she ordered blood tests and the race was on. Multiple doctor appointments, blood tests, bone marrow biopsy, etc. later I was diagnosed with this strange disease called Essential Thrombocythemia. I am currently on 1000 mg Hydrea daily. The problem is I still feel awful. I'm very frustrated right now. Any way I'd like to correspond with you. Perhaps we can support each other and provide each other with information since it seems to be relatively hard to come by. By the way my next appointment is also October 28. Take care and be well. Linda Hi Kanetta,
I was just diagnosed with ET a couple of weeks ago. I went in for a routine annual exam, mentioned to my doc that I was feeling lousy, she ordered blood tests and the race was on. Multiple doctor appointments, blood tests, bone marrow biopsy, etc. later I was diagnosed with this strange disease called Essential Thrombocythemia.
I am currently on 1000 mg Hydrea daily. The problem is I still feel awful. I’m very frustrated right now.
Any way I’d like to correspond with you. Perhaps we can support each other and provide each other with information since it seems to be relatively hard to come by. By the way my next appointment is also October 28.
Take care and be well.
Linda

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