http://kanetta.com The wonderful world of Kanetta! Thu, 16 Jul 2009 18:16:55 +0000 http://backend.userland.com/rss092 en It has been a while since I posted but it is not because I didn't want to do it.  Sometimes I feel that this disease is always hovering over my head and all I want to do is just get away from it and not talk about it at all.  That works until ... http://kanetta.com/uncategorized/living-with-essential-thrombocythemia-and-acceptance/ DISCLAIMER:  None of the products in the ads that appear in the Kanetta.com Blog have been used or tried by Kanetta   It is very important that you do not consider the kanetta.com Blog or Kanetta as endorsing these advertisements or the links in any way.  Kanetta http://kanetta.com/uncategorized/71/   Hi Everyone, Two months ago my doctor told me to stay on the same Hydroxurea dosage of 500mg. daily even though my platelets were steadily increasing and had reached 887 and guess what?  My platelets went down over 100 points to 785.  I just couldn't believe it.  Also, my anemia was ... http://kanetta.com/uncategorized/ups-and-downs-of-essential-thrombocythemia/ [caption id="attachment_63" align="alignnone" width="300" caption="Kanetta at home with Tiffy."][/caption] Hi Everyone, thanks to all who have written in and given us an inside glimpse of what it is like living with this disease.  It really helps the attitude to know that you are not the only one out there that has Thrombocythemia.  All ... http://kanetta.com/kanettas-update-january-20009/thrombocythemia-and-living/   A day at the Fairhope Beach!   Video Link - Visiting the Doctor  I had my doctor's (Oncologist) appointment this past Tuesday and he has reduced my dosage of Hydrea to only 5 mg. daily.  I take the generic Hydroxyurea.  It is less expensive and is the same identical medicine.  I also take one low dosage ... http://kanetta.com/uncategorized/kanettas-update-essential-thrombocythemia-and-coping/ Kanetta at Big Lagoon Park with Tiffy     After my last entry, I went back to the doctor .  This time it was only for blood work.  Well, my platelets were 1 point higher than the last time I was there.  That means only that my platelets are at the same level ... http://kanetta.com/kanettas-medical-update-august-2008/kanetta-update/ My name is Kanetta and I have Essential Thrombocythemia. The reason I started this blog is to let other people who have this disease know that they are not alone. When I was first diagnosed, I tried to find information on this little known and rare disease and could not ... http://kanetta.com/kanettas-early-symtoms/thrombocythemia-search/